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Understanding and managing pain in Parkinson’s

Pain and Parkinson’s

As Parkinson’s progresses, most people will experience pain at some point. However, pain affects each person differently:

  • Pain may present as a feeling of tingling, numbness, stiffness, or aching.
  • Pain can be a major issue for some people, but a relatively minor issue for others.

Causes of pain in Parkinson’s 

  • Poor posture
  • Stiff muscles and dystonia
  • Medications
  • An unrelated condition such as arthritis that can be made to feel worse by Parkinson’s.

Managing pain in Parkinson’s 

If you’re experiencing pain, tell your GP or specialist. It can also be helpful to keep a diary to write down questions about the pain such as:

  • Is it a new pain?
  • Where is the pain and what does it feel like?
  • When does it occur and how long does it last?
  • Do your Parkinson’s medications help with the pain?
  • Is there anything that helps to ease the pain?
  • Is there anything that worsens the pain?

These are all important details that your doctor will need to know to help you with your pain management.

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Being diagnosed with Parkinson’s is a personal experience but no one has to face Parkinson’s alone. Support and information can make a significant and positive difference to the lives of those living with Parkinson’s, their families and carers.

Please note: Fight Parkinson’s uses the phrase Parkinson’s rather than Parkinson’s Disease to reflect the community’s preference. Parkinson’s Disease is used only when necessary such as in medical, research or government contents, or in direct quotes.