Living with Young Onset Parkinson’s, the exhibition
While studying the experiences of people living with Young Onset Parkinson’s Lewis Johnstone found it was difficult for participants to always find the right words. In a bid to help find those words, he suggested people take photos of the everyday things in their life that reminded them of the condition. Soon he was presented […]
Early and Young Onset Parkinson’s – Science and Society
Dr Kishore Kumar spoke on the clinical considerations of Young Onset Parkinson’s at Fight Parkinson’s 2025 Research Symposium. His presentation was followed by a discussion on lived experience of Young Onset Parkinson’s with Sheenagh Bottrell and Parkinson’s nurse Victor McConvey. What age is young – a very important question The definition of Young or Early […]
Taking diagnosis head on from day one
To look at her life from the outside, Abby says there isn’t much that shows she has Parkinson’s, except her eagerness to tell everyone and anyone she meets. “I am not shy about sharing, if people ask me, I’ll tell them everything,” Abby said. “When I was diagnosed my neurologist was like, you can take […]
For Travis, a Young Onset Parkinson’s diagnosis led to him to new pathways
Travis’ Young Onset Parkinson’s diagnosis doesn’t stop him from living life how he wants to, but he admits it took him time to get to where he is now. After spending years finding a career path that felt right for him, Travis found home in the Australian Army. However, just five years into his role, […]
Defying Parkinson’s: Kylie Christian’s journey of resilience through para dressage
Kylie Christian’s passion for horse riding began at just eight years old when she received her first horse. However, the trajectory of her equestrian career took an unexpected turn when she was diagnosed with Young Onset Parkinson’s at 45. Kylie’s determination to not let Parkinson’s define her has made her a beacon of hope for […]
Ask The Expert webinar series
This webinar series provides you with the opportunity to hear from, and ask questions of, experts on a variety of topics relating to symptom management, treatment and promising research. Attendence is FREE and is online via Teams. Each webinar is facilitated by Fight Parkinson’s. Thinking, memory and Parkinson’s, with Dr Luke Smith 25 Nov 2025 […]
Research call-out: Gym-based strength training for people with early onset Parkinson’s
This type of progressive, weight-based strength training focuses on three large, multi-joint exercises used to build muscle strength and coordination: the squat, deadlift and bench press. The project has modified these exercises to ensure safety and allow adequate rest time. All gym sessions are supervised one-to-one by personal trainers who have been educated in safe […]
Richard Grimmett’s Young Onset Story
At the time, he was working as a funeral director in Ocean Grove. Given that Richard’s father, uncle and brother had previously been diagnosed with Parkinson’s, he and his wife Heather were able to spot the symptoms early. Since Parkinson’s was already familiar to them, they found some degree of comfort in knowing that Parkinson’s […]
The rollercoaster ride of Young Onset Parkinson’s
To support Mandy’s 27forParkinson’s fundraising efforts: Mandy is focussing on her health and well-being so she’s in peak condition for her Parkinson’s fight. And she is using the 27forParkinson’s community fundraiser to publicly kick-start her campaign. Mandy’s story begins in 2018 when a tremor was noticed in her right hand during a routine migraine check-up. […]
Improving understanding of YOPD after diagnosis
Central to this research will be examination of how those diagnosed with YOPD engage in strategies to retain their past, experience the present and reflect on possible futures. The Monash University research project aims to better understand the psychosocial impacts of YOPD and help identify a roadmap for understanding YOPD after diagnosis. It builds on […]