The Who
Who is Fight Parkinson’s?
As a leading organisation for Parkinson’s, providing research, education, and support, we are constantly working to realise possibilities for people living with Parkinson’s. Over the last 40 years, we have greatly improved quality of life for people living with Parkinson’s, including Young Onset Parkinson’s, and Atypical Parkinson’s (PSP, MSA and CBS).
At Fight Parkinson’s, (formerly known as Parkinson’s Victoria) our community is at the forefront of all we do. We believe that with strong sector coordination and leadership, and greater community and government support, we can realise better outcomes.
Our multidisciplinary team provides specialist advice and support to people living with Parkinson’s, their families, carers, and healthcare professionals through:
- tailored health education programmes and seminars
- a free and confidential health information service
- comprehensive web-based information
- an extensive peer support group network.
We are committed to raising funds to advance research that will deliver effective therapies, treatments, and a cure and to empower our community to live full and active lives until a cure is found.
Who gets Parkinson’s?
Parkinson’s can affect anyone, but it is more common in older adults, particularly men, and those with a family history of the disease. Specific genetic mutations have been linked to an increased risk of developing the disease, although having these mutations does not guarantee that an individual will develop Parkinson’s. Exposure to certain environmental toxins, such as pesticides and herbicides, has also been associated with a higher risk of developing Parkinson’s.
Who does Parkinson’s affect?
The impact of Parkinson’s and Atypical Parkinson’s (PSP, MSA, CBS) extends further than just the person who has been diagnosed. The condition can be challenging to them, but also to those closest to them who may become their carers. A carer is a person who provides unpaid care and support for someone with Parkinson’s or Atypical Parkinson’s. Carers may be partners, relatives, friends, or neighbours.
People become carers for different reasons. Many people become carers because they want to help, while others see it as a natural extension of their current relationship. Many carers feel that it’s simply what they should do. For this reason, some people are reluctant to identify themselves as a carer. Whatever their reason is for becoming a carer, this role is a very important one that can be very rewarding but also extremely challenging.
Please click here to learn more about supporting carers of people with Parkinson’s and Atypical Parkinson’s.
Who can diagnose Parkinson’s?
In Australia, diagnosis of Parkinson’s typically begins with a general practitioner (GP), who will assess symptoms and medical history. If necessary, the GP may refer the patient to a neurologist, ideally one specialising in movement disorders, for a more accurate diagnosis. Additionally, geriatricians can also provide Parkinson’s diagnoses, especially in older patients.
Keep an eye out throughout April to learn more about Parkinson’s and read a heartfelt personal story from one of our valued community members.