In 2018, Dr Susan Slade, Senior Research Fellow at La Trobe University, commenced a research project aimed at broadening our understanding of factors that may influence participation in exercise and physical activity by people living with Progressive Supranuclear Palsy (PSP).

The project was funded through the Argyrou Family and Atypical Fellowship, awarded at Fight Parkinson’s 2018 Insearch lecture series.

It looked at identifying the barriers and enablers to participation in exercise therapy and physical activity for people living with PSP.

In 2019-20, Fight Parkinson’s funded Dr Slade and Professor Meg Morris for an extension of this project to allow for:

• extended data collection to achieve a larger number of neurologists, therapists and patients
• publication of two new manuscripts on the focus group results in peer reviewed international journals
• data collection for a new element of the project led by Prof. Morris: worldwide clinical guidelines for exercise and physical activity in PSP
• development of information resources brochures for people living with PSP including exercise and physical activity recommendations.