Health care professional call-out: Have your say on ParkinsonNet Australia–the worldclass Parkinson’s care model from the Netherlands
Motivated by her own Parkinson’s diagnosis and personal experience, Professor Michele Callisaya of the University of Tasmania’s Menzies Institute for Medical Research, leads a multidisciplinary team of clinician researchers specialising in brain disease and rehabilitation. Together they plan to adapt and test the world-leading model from the Netherlands called ‘ParkinsonNet’ for regional Australians. The project aims […]
Research call-out: Join stage one of a nationally significant project to improve care for people living with Parkinson’s
The Australian model of ParkinsonNet will focus on care which has been codesigned by people living with Parkinson’s and health carers who live and work in regional Australia, which researchers believe will be crucial to its success. The ParkinsonNet survey Victoria aims to: improve access to expert multidisciplinary care for people with Parkinson’s. provide specialised training opportunities […]
Research call-out: What is important in conversations for people living with Parkinson’s?
About the Parkinson’s conversation study This Parkinson’s conversation study is being conducted by the Speech Pathology Department within the School of Allied Health, Human Services and Sport at La Trobe University. The research team is interested in understanding what matters most to people when they communicate and what makes conversation easier or harder. Who can […]
Seven in Seven for Colin
Colin’s story is a reflection not only on how far Parkinson’s reaches, but on how you can find community in the most unlikely of places. A trip to remember Coming to Australia from Ireland, Colin expected to find friends, adventure, a new lease on life. He hadn’t anticipated connecting with the Parkinson’s community. After speaking […]
Building community and strength: Joining a Fight Parkinson’s Peer Support Group
Peer support groups offer space to learn more about living with Parkinson’s and to connect with others who understand the challenges and day‑to‑day experiences. These groups provide a sense of community, practical ideas, and emotional support. Fight Parkinson’s facilitates more than 70 peer support groups across Victoria including 8 special interest peer support groups and […]
Living with Young Onset Parkinson’s, the exhibition
While studying the experiences of people living with Young Onset Parkinson’s Lewis Johnstone found it was difficult for participants to always find the right words. In a bid to help find those words, he suggested people take photos of the everyday things in their life that reminded them of the condition. Soon he was presented […]
Fight Parkinson’s lodges public submission to the new Individual Disability Advocacy Program
This week, Fight Parkinson’s has lodged a public submission to the Australian Government’s consultation on the new Individual Disability Advocacy Program (IDAP). Our submission draws on clinical, lived experience, and service delivery expertise to highlight the advocacy needs of people living with Parkinson’s and rarer Atypical Parkinson’s conditions, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Syndrome (CBS), and how a new IDAP can better support them […]
Supporting Megan to support her dad
With the chance to raise funds for her charity of choice as part of Run Melbourne, Megan nominated Fight Parkinson’s. Hoping to raise $2,000 in the lead up to running the half marathon, she was elated to double her goal. “It was such an incredible experience doing the run, and I was blown away by the amount I […]
The two Me’s
Every morning my ‘other’ me springs out of bed bright and early, ready to face the coming day with vigour and vim. Perhaps she’ll do a wash and hang it out to dry in the lovely light breeze, cook her loved one a tasty breakfast, or potter in the garden. Perhaps pop down the street to do a little shopping or just to socialize, before […]
Fight Parkinson’s launches 2026 seed grant program to fund research innovation
After a successful inaugural program in 2025, Fight Parkinson’s is pleased to support further research funding in the next year. Seed Funding Grants are available for both clinical and basic science research, with each category offering a grant of $30,000. These grants underpin Fight Parkinson’s ongoing commitment to raise funds to support research focused on the […]