Living and caring with PSP
Supporting her mum, trying to understand her diagnosis, and stepping wholeheartedly into a carers role was a difficult and at times confronting experience. Bec has written a heartfelt and honest reflection of the years she and her family spent living and caring with PSP. She hopes that by sharing her story, other family members caring […]
Research call-out: Apathy and Motivation in Parkinson’s
Parkinson’s disease is usually considered a disorder of movement, but many patients also suffer from problems with thinking and motivation. At the Turner Institute for Brain and Mental Health at Monash University, they will conduct research into the difficulties with cognition and motivation commonly faced by individuals with Parkinson’s. Their goal is to better understand […]
How Fight Parkinson’s helped Wendy through diagnosis
Over a long career in physiotherapy, Wendy supported many patients living with Parkinson’s and had done all the training available to her on the condition. But none of that made her own Parkinson’s diagnosis any easier. “It’s the most badly handled thing I’ve ever come across,” she remembers. “They just gave me my diagnosis, and no one checked in on me […]
Early and Young Onset Parkinson’s – Science and Society
Dr Kishore Kumar spoke on the clinical considerations of Young Onset Parkinson’s at Fight Parkinson’s 2025 Research Symposium. His presentation was followed by a discussion on lived experience of Young Onset Parkinson’s with Sheenagh Bottrell and Parkinson’s nurse Victor McConvey. What age is young – a very important question The definition of Young or Early […]
Will’s Run 4 Mum
When Will’s mum, Angela, was diagnosed with Parkinson’s five years ago, it came as a shock to the family. A bubbly, energetic, caring woman it’s been hard for the Hooper family to watch as the condition has progressed. But not one to sit still and watch, Will decided he wanted to do something positive to […]
Falls prevention and Parkinson’s
The lack of dopamine levels in the brain means people can have difficulties in controlling their movements and moving freely. Movement slows, muscles stiffen, and posture can change. These changes can lead to challenges with walking, increasing the risk of falling and freezing. Walking (Gait) Gait is used to describe how a person walks and […]
Working with your medications, and making medications work for you
One of the first things your neurologist may discuss with you after a Parkinson’s diagnosis is medications, and how they can combat or reduce your symptoms. While medications cannot cure Parkinson’s they are important tools in managing symptoms, alongside other supportive therapies. What medications and dosages are right for you will be determined by your […]
Taking diagnosis head on from day one
To look at her life from the outside, Abby says there isn’t much that shows she has Parkinson’s, except her eagerness to tell everyone and anyone she meets. “I am not shy about sharing, if people ask me, I’ll tell them everything,” Abby said. “When I was diagnosed my neurologist was like, you can take […]
Focused Ultrasound – is it ready for Parkinson’s?
With recent media coverage on the success of the procedure and its approval for use in the United States, Dr Thevathasan is fielding questions from the Parkinson’s community regularly. As excitement and anticipation grows within the community, he is helping provide a realistic understanding of the technology and its potential uses for those living with […]
Physiotherapists and Parkinson’s
Parkinson’s is a complex condition and engaging a multidisciplinary health team can help manage a range of symptoms. One of the specialists you might engage with it a physiotherapist. Physiotherapists use exercise and other forms of physical therapy to help keep people mobile when they are affected by a long-term condition, such as Parkinson’s. It […]