Living and caring with PSP
Supporting her mum, trying to understand her diagnosis, and stepping wholeheartedly into a carers role was a difficult and at times confronting experience. Bec has written a heartfelt and honest reflection of the years she and her family spent living and caring with PSP. She hopes that by sharing her story, other family members caring […]
Physiotherapists and Parkinson’s
Parkinson’s is a complex condition and engaging a multidisciplinary health team can help manage a range of symptoms. One of the specialists you might engage with it a physiotherapist. Physiotherapists use exercise and other forms of physical therapy to help keep people mobile when they are affected by a long-term condition, such as Parkinson’s. It […]
Building your multidisciplinary health team
A multidisciplinary model of care is widely regarded as the best approach for Parkinson’s. These teams bring together health professionals from a variety of medical disciplines to provide coordinated, comprehensive care. The integration of a ParkinsonNet model of care into Australia will further support the development and management of these multidisciplinary teams. While no two […]
Working with Disability Liaison Officers when attending hospital
Disability Liaison Officers are available in many public health regions in Victoria and can provide free assistance to you both before, during, and after a hospital stay. These workers can be both proactive and reactive as your needs change. A simple phone call or email can link you to your local DLO. Prior to stay […]
Fact sheet – Communicating with people living with Parkinson’s
Communication is a two-way interaction, effective communication requires work from both the listener and the speaker. This guide provides practical insights and techniques to ensure that people living with Parkinson’s are not left out of communication exchanges. The sheet can be useful for loved ones and health care professionals. If you are living with Parkinson’s […]
It was an easy choice for Laura to care for Laurence, she wants others to know support is available
Laurence was diagnosed with Parkinson’s in 2018, but the pair’s story begins well before then. Their relationship began in Alaska in 1987 and continued to Melbourne where the couple ran a chiropractic clinic as a psychologist and chiropractor respectively. Prior to this, Laura was a multi-disciplinary artist and in her early 50’s Laura found herself […]
2025 Community Seminars
The community seminars feature information on a range of topics designed to help people better understand Parkinson’s, its treatments and the value of social connection. As leaders within the Parkinson’s community in Australia, Fight Parkinson’s has developed an understanding of the needs and challenges of people living with Parkinson’s, and Atypical Parkinson’s (PSP, MSA & […]
Sibling relationships after life-changing diagnosis
Sue is the second youngest of six close-knit siblings who grew up on a dairy farm at Cooma in Victoria’s Goulburn Valley. When eldest sister Christine (67) was diagnosed with Parkinson’s 10 years ago, the family were shocked as their Dad, Jack Marshall, had also lived with the condition. As a pediatric nurse and her […]
Three New Online Courses added to Fight Parkinson’s Community Learning Hub
These courses are specially designed to support carers, women, and the LGBTIQA+ community, who often face unique challenges related to Parkinson’s and can face barriers in accessing the support they need. These courses are recommended to enhance your understanding of Parkinson’s and learn how each person’s journey is unique and care can be tailored. Empowering […]
Essential information for hospital staff
People with Parkinson’s have specific needs when admitted to hospital. This guide provides practical information for hospital staff to help ensure safe, person-centred care during a patient’s stay. It covers key aspects of Parkinson’s care in a hospital setting, including medication timing, mobility, communication, and nutrition.