PSP Awareness Month 2026: Increasing awareness of Progressive Supranuclear Palsy
What is PSP? PSP is a rare and progressive brain disorder that can have overlapping symptoms at diagnosis with those of Parkinson’s, but the conditions are different and we recognise that this can cause frustration around lack of recognition and validation. PSP, previously known as, and sometimes still called ‘Steele Richardson syndrome’ is identified as […]
Research call-out: Modernising the cognitive trajectory of people living with PSP
People living with PSP often suffer from thinking and memory problems, and can lead to dementia. Currently, cognitive function is measured using conventional “pen and paper” tests. These tests are time consuming, need expert supervision and do not always detect changes over follow up. The goal of this study is to assess whether a new, […]
Living and caring with PSP
Supporting her mum, trying to understand her diagnosis, and stepping wholeheartedly into a carers role was a difficult and at times confronting experience. Bec has written a heartfelt and honest reflection of the years she and her family spent living and caring with PSP. She hopes that by sharing her story, other family members caring […]
Mae was formidable, remarkable, but Progressive Supranuclear Palsy took her away too soon
These are the words of Queeny Stafford, who cared for her mum in the years before and after Mae’s diagnosis with Progressive Supranuclear Palsy (PSP). Queeny generously shared her story with us in the hope that other families will not feel as alone as she did, traversing the long and difficult journey to diagnosis. When […]
Walk for PSP: Remembering and celebrating Ronda
A fiercely independent woman, Ronda dedicated her life to bringing joy to those around her. She spent four decades as a teacher and raised two daughters alongside her husband, Chris, in South Australia. Together they travelled the world, basking in new places and cultures. Ronda was adventurous, hopeful, a stickler for the rules, and most […]
Atypical Parkinson’s and COVID-19
People living with Atypical Parkinson’s – and their carers – should continue taking precautions against COVID-19 to reduce the risk of infection.
Designing evidence-based exercise programs for people living with Progressive Supranuclear Palsy (PSP)
In 2018, Dr Susan Slade, Senior Research Fellow at La Trobe University, commenced a research project aimed at broadening our understanding of factors that may influence participation in exercise and physical activity by people living with Progressive Supranuclear Palsy (PSP).