The story behind the National Parkinson’s Action Plan
With more than 200,000 Australians affected by Parkinson’s, Australia has never had a national framework to guide how care, support, research, and policy responses should be coordinated. Recognising this gap, leaders from across the Parkinson’s community began working together to call for national action. 2023 – National taskforce established In August 2023, a national taskforce […]
National Parkinson’s Action Plan: An update from Fight Parkinson’s
The NPAP represents years of advocacy and collaboration across the Parkinson’s community and sector, led by the National Parkinson’s Alliance (NPA) of which Fight Parkinson’s is a founding member. Most importantly, it reflects the voices and experiences of more than 200,000 people living with Parkinson’s, their families, and carers. Joining us at the launch in Canberra were Sheenagh Bottrell and Pam […]
Fight Parkinson’s lodges public submission to the new Individual Disability Advocacy Program
This week, Fight Parkinson’s has lodged a public submission to the Australian Government’s consultation on the new Individual Disability Advocacy Program (IDAP). Our submission draws on clinical, lived experience, and service delivery expertise to highlight the advocacy needs of people living with Parkinson’s and rarer Atypical Parkinson’s conditions, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Syndrome (CBS), and how a new IDAP can better support them […]
Focused Ultrasound – is it ready for Parkinson’s?
With recent media coverage on the success of the procedure and its approval for use in the United States, Dr Thevathasan is fielding questions from the Parkinson’s community regularly. As excitement and anticipation grows within the community, he is helping provide a realistic understanding of the technology and its potential uses for those living with […]
Travel Grants now open to attend World Parkinson Congress
The World Parkinson Congress (WPC) is a unique opportunity for researchers, clinicians, people living with Parkinson’s, and healthcare professionals from across the globe to connect and share knowledge. To help make attending the Congress in America more accessible, a select number of travel grants are available to subsidise the cost of attendance. Grants are available […]
New name, same care: Chronic Disease Management Plans revamped
The change intends to make access to care easier for you and your loved ones. As of July 1, Chronic Disease Management plans (CDMP) and Team Care Arrangements (TCA) have been merged into a singular entity known clinically as a GP Chronic Condition Management Plan (GPCCMP). These changes have been implemented in the hopes of […]
World Parkinson Congress calls for abstract submissions
The congress is welcoming submissions in two categories, scientific and lived experience, providing a rare opportunity for researchers, clinicians, advocates and those living with Parkinson’s to share knowledge and learn together. Scientific abstracts are welcomed across a range of basic and clinical sciences as well as clinical care. Living with Parkinson’s abstracts are an opportunity […]
The National Parkinson’s Action Plan community consultation survey
This is a significant milestone in the journey to improve the lives of Australians living with Parkinson’s. Developed by the National Parkinson’s Alliance (NPA) with support from KPMG, the NPAP is a coordinated national effort to deliver positive change by addressing the complex and growing challenges faced by people living with Parkinson’s in Australia. Now, it’s your […]
Thanks to you – our Parkinson’s community – for championing Parkinson’s awareness this April
This year Fight Parkinson’s wanted to shine the light on you, our fantastic community members who consistently rise to the occasion to fight Parkinson’s. The confidence and compassion the Parkinson’s community has shown this month has been astounding. From fundraising to attending events, sharing your stories and helping shine a light on Parkinson’s, this April […]
Fight Parkinson’s and University of Tasmania lead $3.7 million push to transform Parkinson’s care
ParkinsonNet, developed in the Netherlands and proven across Europe and the United States to improve health outcomes, reduce disability, lower hospitalisation rates and cut healthcare costs, will be piloted in Western Victoria (including Geelong and the Bellarine) and Tasmania. The pilot will be led by Professor Michele Callisaya from the University of Tasmania’s Menzies Institute […]