Discovering the human endeavour: Steve’s powerful perspective on ‘Living Parkinson’s’
After receiving his diagnosis, it took two days for Steve to ‘Google’ the life expectancy of someone who lives with Young-Onset Parkinson’s, and two years to begin to proactively address his diagnosis, which he received in 2019 at the age of 55. As someone who was already focused on staying in shape and eating healthy […]
20 years of Painting with Parkinson’s: Mixing colour and compassion to create a community
The origins of Painting with Parkinson’s During a walk through the gardens of Berwick 20 years ago, Anne was inspired to form a support group. This Victoria-wide support group initially began as “a place for people struggling with infertility”, but evolved over time to eventually become the Fight Parkinson’s Berwick Painting with Parkinson’s Support Group. […]
Parky Soccer: A social group rewriting the rules
Continued support through Fight Parkinson’s After receiving his diagnosis of Young-Onset Parkinson’s in 2010, Mark recalled attending an in-person ‘Recently Diagnosed Seminar’ held by Fight Parkinson’s—then known as Parkinson’s Victoria. Since this first interaction, Mark said that he and his wife have contacted Fight Parkinson’s on multiple occasions, for different reasons, but has always found […]
A community fundraising tribute to ‘the Prince of Darkness’
About the live music fundraising event Held on Friday 13 February 2026, the fundraiser marked the 56th anniversary of Black Sabbath’s (Osbourne’s heavy metal band) self-titled debut album, which was released on Friday 13 February 1970. Jess received help from Matt Thorburn at Black Oceans Media and Tom Nugara at Black-Roos Entertainment, who helped to book the show, from organising the venue, […]
PSP Awareness Month 2026: Michelle and Mark find peace with PSP through normalcy
Michelle first began exhibiting symptoms of PSP in 2021—dragging her left foot and loss of balance. After suffering two bad falls in which she broke both of her shoulders—the right shoulder in 2022, then the left in 2023—Michelle strongly advocated for herself and her wellbeing, telling her GP, “I’m a danger to myself, I need to see another neurologist.” Michelle met with three […]
Sharon’s Trivia Night Fundraiser: A dedication to dad
Parkinson’s trivia night fundraiser Promoting the event through word of mouth, social media, and personal networks, Sharon said that the turnout was fantastic, with 80 guests in attendance, equating to 10 tables of 8. “Returning teams brought new friends, and it was lovely to welcome new faces alongside our familiar ones,” said Sharon. In addition […]
Living with Parkinson’s: Rey and Nene’s journey riding the waves together
Caregiving is a life-changing experience. After 39 years of working in the corporate world, I happily retired with a plan to check the boxes off our bucket list with Rey. The transition into retirement was going well, but Rey’s Parkinson’s diagnosis in early 2025 came unexpectedly and was mind-blowing. The Parkinson’s diagnosis Before his diagnosis, […]
When Peter needed help, Fight Parkinson’s picked up the phone
Parkinson’s is the world’s fastest growing neurological condition, with symptoms progressing and changing over time. People like Peter rely on support made possible by good people like you—year after year. Donate now After experiencing an abundance of symptoms—like walking with his arms pinned by his sides, sticking out his chin, and slurring his speech—Peter was […]
Parkinson’s Awareness Month 2026: Gavin’s Story
To conclude Parkinson’s Awareness Month 2026, Gavin shares his powerful story. From loss to love, diagnosis to advocacy, discover his journey of hope and perseverance. Gavin’s Story: Powering through Parkinson’s Being widowed suddenly at the age of 40 with two daughters aged 6 and 10 required a lot of resilience, as anyone facing this situation would know. […]
Pilates 4 Parkinson’s: Vicky commemorates her father
When Vicky’s dad, John, passed away in 2022, Vicky launched ‘Pilates 4 Parkinson’s’, combining her passion for movement with an honourary fundraiser for Parkinson’s awareness, research, and support. Taking place within the stunning Hubert Estate Gallery of Art space in the Yarra Valley, Vicky offered an hour-long guided mat Pilates session to the community. This year, the second ‘Pilates […]