Living with Young Onset Parkinson’s, the exhibition
While studying the experiences of people living with Young Onset Parkinson’s Lewis Johnstone found it was difficult for participants to always find the right words. In a bid to help find those words, he suggested people take photos of the everyday things in their life that reminded them of the condition. Soon he was presented […]
Fight Parkinson’s lodges public submission to the new Individual Disability Advocacy Program
This week, Fight Parkinson’s has lodged a public submission to the Australian Government’s consultation on the new Individual Disability Advocacy Program (IDAP). Our submission draws on clinical, lived experience, and service delivery expertise to highlight the advocacy needs of people living with Parkinson’s and rarer Atypical Parkinson’s conditions, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Syndrome (CBS), and how a new IDAP can better support them […]
Supporting Megan to support her dad
With the chance to raise funds for her charity of choice as part of Run Melbourne, Megan nominated Fight Parkinson’s. Hoping to raise $2,000 in the lead up to running the half marathon, she was elated to double her goal. “It was such an incredible experience doing the run, and I was blown away by the amount I […]
The two Me’s
Every morning my ‘other’ me springs out of bed bright and early, ready to face the coming day with vigour and vim. Perhaps she’ll do a wash and hang it out to dry in the lovely light breeze, cook her loved one a tasty breakfast, or potter in the garden. Perhaps pop down the street to do a little shopping or just to socialize, before […]
Fight Parkinson’s launches 2026 seed grant program to fund research innovation
After a successful inaugural program in 2025, Fight Parkinson’s is pleased to support further research funding in the next year. Seed Funding Grants are available for both clinical and basic science research, with each category offering a grant of $30,000. These grants underpin Fight Parkinson’s ongoing commitment to raise funds to support research focused on the […]
Managing Symptoms: Tips and tricks for enjoying the social season
Fatigue is a common symptom for people living with Parkinson’s, and when we are adding more outings and get togethers across the Christmas and New Year period to our schedule, fatigue can feel overwhelming. While fatigue and sleepiness are often used interchangeably in conversation, they are different symptoms. Fatigue is persistent feeling of exhaustion irrespective of […]
Speaking openly on sex and intimacy
Psychologist Alexandra Bowring shared some advice on how to address issues in the bedroom before they become a problem too big to solve. Finding the right way to speak to your partner about struggles with sex and intimacy can be intimidating, no matter how long you’ve been together. Establishing non-judgemental and non-confrontational communication is a […]
Living and caring with PSP
Supporting her mum, trying to understand her diagnosis, and stepping wholeheartedly into a carers role was a difficult and at times confronting experience. Bec has written a heartfelt and honest reflection of the years she and her family spent living and caring with PSP. She hopes that by sharing her story, other family members caring […]
Research call-out: Apathy and Motivation in Parkinson’s
Parkinson’s disease is usually considered a disorder of movement, but many patients also suffer from problems with thinking and motivation. At the Turner Institute for Brain and Mental Health at Monash University, they will conduct research into the difficulties with cognition and motivation commonly faced by individuals with Parkinson’s. Their goal is to better understand […]
How Fight Parkinson’s helped Wendy through diagnosis
Over a long career in physiotherapy, Wendy supported many patients living with Parkinson’s and had done all the training available to her on the condition. But none of that made her own Parkinson’s diagnosis any easier. “It’s the most badly handled thing I’ve ever come across,” she remembers. “They just gave me my diagnosis, and no one checked in on me […]